It's taken a while to sort through what we heard from the cardiologists in Milwaukee. They did an echo, checkup and exercise stress test. Then they announced that JJ looked "better than advertised" so they decided to skip anything invasive like the cath.
Wow, we'd never had a cath canceled. And really didn't expect to get this kind of news. I guess they expected a much sicker kid.
Of course they told us that when he starts to show symptoms, he'd need something done. And it wasn't likely that they'd do any work on his valves. Instead, since he'd need work on two valves, they'll probably list him for a transplant. Scary stuff. But the doc said we probably had a handful of years until that was going to happen. I'm hoping for a really big handful!
So we escaped Milwaukee and dashed for home. Kids were upset that we didn't stay in a hotel and go swim. We were glad to save the money and sleep in our own beds!
So the saga--and waiting--continues. By the handful!
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